It's been a good weekend. Nate was able to go to work for a bit on Friday! We were also able to go to dinner and a movie! It was nice to feel a little bit of "normal" for a few hours. We are grateful for these moments.
Today Nate came to church with us! It was soooo good to have him there with our family. Everyone was happy to see him. He's looking pretty "lean" in his new suit that we bought him for our cruise! :) He seems to have a little more energy, and a little less discomfort. Hoping that he's turned a corner, and that he won't have any more complications from his surgery.
This week we'll focus on figuring out which out of state doctor we want to go to so we can settle on a treatment plan. Nate will probably start systemic chemotherapy late this week or early next week. It all depends on how the out of state doctors want to plan for his BIG surgery. We're praying that the choice will be a clear one once we get to interview all the doctors.
Our new medical oncologist here in SLC is great! He's very willing to work with the other doctors, and agrees that we should be very aggressive in Nate's treatment. We are grateful for all the things that have fallen into place over the last few weeks. It's amazing to watch the hand of the Lord work in our lives.
Thanks to all of you who are following this and keeping Nate and our family in your prayers. We can't begin to express the amount of gratitude we are feeling. I've relied heavily on the faith of others when my own fear creeps in. Thank you, thank you!
Our Family's Journey with Appendix Cancer
Sunday, February 26, 2012
Wednesday, February 22, 2012
At the close of another day, we've actually made some progress! Nate is a little more up and around. He actually went into work yesterday for about 6 hours...I think he overdid it, but it was good for him to get out of this bubble he's been living in. His coworkers are great, and they gave so much encouragement yesterday.
He stayed home today, but did work from home. He still has a lot of pain and hasn't gained any weight back. He's getting an appetite, but food kind of makes him sick.
All of Nate's records were faxed yesterday, and overnighted along with his CT scans to five different doctors. We had two doctors contact us today who are both willing to give us an in person consultation! Another doctor emailed us after she learned about his diagnosis from someone we came into contact with who had the same cancer about five years ago. I'm amazed that anyone would even call us! I figured that we'd have to go knocking down their doors to get anyone to listen. Just one more blessing that's been given to us.
Thanks again for all the responses on FB, and for all the emails. It's been so good for Nate to feel your love and support. He's been overwhelmed by all the kind words and gestures. I've been feeling it since the beginning as I've been out and about, but he's been very focused on his recovery, and really hasn't been anywhere to feel the love! It'll be three weeks tomorrow that we started with this craziness, and he's really only been in the hospital and in our house during all that time. Thank you, thank you for all the love!!! Keep it coming! A positive attitude is priceless!
He stayed home today, but did work from home. He still has a lot of pain and hasn't gained any weight back. He's getting an appetite, but food kind of makes him sick.
All of Nate's records were faxed yesterday, and overnighted along with his CT scans to five different doctors. We had two doctors contact us today who are both willing to give us an in person consultation! Another doctor emailed us after she learned about his diagnosis from someone we came into contact with who had the same cancer about five years ago. I'm amazed that anyone would even call us! I figured that we'd have to go knocking down their doors to get anyone to listen. Just one more blessing that's been given to us.
Thanks again for all the responses on FB, and for all the emails. It's been so good for Nate to feel your love and support. He's been overwhelmed by all the kind words and gestures. I've been feeling it since the beginning as I've been out and about, but he's been very focused on his recovery, and really hasn't been anywhere to feel the love! It'll be three weeks tomorrow that we started with this craziness, and he's really only been in the hospital and in our house during all that time. Thank you, thank you for all the love!!! Keep it coming! A positive attitude is priceless!
Monday, February 20, 2012
What???!!!!
Well, I never thought I'd start a blog. I also never thought I'd watch my husband and family go through something like this. If you're looking at this post, you've probably already heard a little about what's going on.
A quick catch-up:
On February 2nd Nate went to the ER at LDS Hospital with what we thought was an appendicitis, (which was pretty inconvenient at the time as we were scheduled to leave on our first cruise the next day to the Southern Caribbean). It didn't take long for the CT scan to show that much more was going on. We went from hoping it was a kidney stone or just some bad gas instead of an appendicitis, to hoping it was an appendicitis when they told us they thought they could see a tumor in front of his appendix. How quickly our perspective changed!
They called in a surgeon, who happened to be a surgical oncologist, and took Nate into surgery. His surgery lasted for three plus hours. Many good friends and family came to sit with me as I waited for news. The doctor removed Nate's appendix, the tumor that grew in his appendix, 50 cm of his ascending and transverse colon, a small portion of his small intestine, most of his ommentum, and scraped remaining tumors from his diaphram and sigmoid colon. They also removed 4 quarts (yes, I said 4 quarts) of mucous that is described as having the consistency of lemon jello. He couldn't remove all of the tumors because the surgery was extensive enough, and Nate wasn't adequately prepped.
I never imagined that I'd have to hear that kind of news. Now I can never imagine taking my husband and family for granted ever again.
Nate spent the next 7 days in the hospital. He was diagnosed with Mucinous Appendix Adenocarcinoma, stage 4. We are thankful that his lymph nodes were not involved, the tumors weren't present inside of his colon, and his chest x-rays have been clear.
This cancer is a rare one, with only 500 to 1000 new diagnosis a year in the United States. We made the decision early on not to go online. With so few cases, and so few doctors treating this cancer, we knew that the data would be all over the place. This cancer is a sneaky one, and is often misdiagnosed. The surgeon figured that the tumor had been growing anywhere from 6 months to 2 years. Looking back, we can see the symptoms starting all the way back in the summer of 2010. It actually explained a lot.
As soon as my family heard the news they were on their way from Idaho. My parents came Friday morning, and my two sisters and nephew came on Saturday. They took care of our children and home until I could feel comfortable enough to leave Nate alone at the hospital. My Mom and Dad stayed for the entire week! They stocked my pantry, cleaned my house, and loved my kids. I can't thank them enough! Nate's family also gave so much support. They watched kids, attended the temple, brought Nate things to do, and visited the hospital often to keep us company. We have an amazing family!
The support didn't stop there. Our entire family, our ward, the adjacent ward that we belonged to a year ago, and many more friends fasted for Nate and our family. Meals started coming in, so many friends visited the hospital, I had over 150 texts in the first 2 days, all in reference to Nate. We received flowers, cookie bouquets, cards, and treats. We are overcome with gratitude, and have truly been humbled to know how many people care for us. I only hope that somehow we will be able to express our gratitude to all of these friends and family members, and to our Father in Heaven, and his son, Jesus Christ.
Nate came home on February 9 to recover. The next week when we went to see his oncologist, we learned that this cancer isn't treated anywhere in Utah. There are actually only a handful of doctors around the country that treat it. That was pretty hard to hear. While we weren't totally surprised by the news, the confirmation of it was surreal.
I'm lucky to have a family who can pick up my slack. They've been researching online, calling my insurance, figuring out travel plans, and calling doctors. This gave me the opportunity to focus on helping Nate recover from his surgery and be here for the kids. My family is awesome!
It's been a hard recovery. Nate's been suffering from a partially obstructed bowel, and has lost 40 pounds. He hasn't been able to eat much and has been on a liquid diet. He stays positive though, and for that I admire him so much!
He seemed to turn a corner yesterday, and was able to eat a cinnamon roll! He's had a little more energy today as well! We're grateful for these blessings.
The treatment for this cancer is something called Heated Intraperitoneal Chemotherapy that's done in conjunction with another debulking surgery. They'll remove as much tumor as they can, the first layer of the peritoneal lining in the abdominal cavity, then place catheters, and administer the heated chemo directly into Nate's abdominal cavity. They'll let the chemo slosh around for 90 minutes. The entire procedure can take up to 12 hours. They call it the MOAS...the Mother Of All Surgeries. It's hard to think about facing something like this, but Nate is ready to fight. In total, we'll be gone for treatment for 3 to 6 weeks depending on how his recovery goes.
Our plan this week is to contact 3 to 4 doctors in Houston, San Diego, Spokane, and Boston. We'll be sending Nate's medical history to these doctors and wait a few days to find out who will treat him. From there we'll be interviewing the doctors and hopefully be able to pick one by early next week. Once we choose a doctor and facility, we'll need to get our insurance on board. Depending on how long that process takes, it'll still be a few weeks until we can be ready to travel for treatment. There will be more scans and tests, and tons of planning to do before we can leave.
Everyone's been so kind, and everyone wants to know what they can do to help. The biggest help we can ask for right now is for everyone to offer prayers on Nate's and our family's behalf. We've relied heavily on our faith and the faith of others. We know Heavenly Father loves us and is prepared to bless.
I'll try my best to update this blog as we get any new information. We appreciate all the thoughts, prayers, phone calls, dinners, and words of encouragement. It's impossible for us to convey our gratitude to you all. Please keep your prayers coming as we face a week full of tough decisions.
A quick catch-up:
On February 2nd Nate went to the ER at LDS Hospital with what we thought was an appendicitis, (which was pretty inconvenient at the time as we were scheduled to leave on our first cruise the next day to the Southern Caribbean). It didn't take long for the CT scan to show that much more was going on. We went from hoping it was a kidney stone or just some bad gas instead of an appendicitis, to hoping it was an appendicitis when they told us they thought they could see a tumor in front of his appendix. How quickly our perspective changed!
They called in a surgeon, who happened to be a surgical oncologist, and took Nate into surgery. His surgery lasted for three plus hours. Many good friends and family came to sit with me as I waited for news. The doctor removed Nate's appendix, the tumor that grew in his appendix, 50 cm of his ascending and transverse colon, a small portion of his small intestine, most of his ommentum, and scraped remaining tumors from his diaphram and sigmoid colon. They also removed 4 quarts (yes, I said 4 quarts) of mucous that is described as having the consistency of lemon jello. He couldn't remove all of the tumors because the surgery was extensive enough, and Nate wasn't adequately prepped.
I never imagined that I'd have to hear that kind of news. Now I can never imagine taking my husband and family for granted ever again.
Nate spent the next 7 days in the hospital. He was diagnosed with Mucinous Appendix Adenocarcinoma, stage 4. We are thankful that his lymph nodes were not involved, the tumors weren't present inside of his colon, and his chest x-rays have been clear.
This cancer is a rare one, with only 500 to 1000 new diagnosis a year in the United States. We made the decision early on not to go online. With so few cases, and so few doctors treating this cancer, we knew that the data would be all over the place. This cancer is a sneaky one, and is often misdiagnosed. The surgeon figured that the tumor had been growing anywhere from 6 months to 2 years. Looking back, we can see the symptoms starting all the way back in the summer of 2010. It actually explained a lot.
As soon as my family heard the news they were on their way from Idaho. My parents came Friday morning, and my two sisters and nephew came on Saturday. They took care of our children and home until I could feel comfortable enough to leave Nate alone at the hospital. My Mom and Dad stayed for the entire week! They stocked my pantry, cleaned my house, and loved my kids. I can't thank them enough! Nate's family also gave so much support. They watched kids, attended the temple, brought Nate things to do, and visited the hospital often to keep us company. We have an amazing family!
The support didn't stop there. Our entire family, our ward, the adjacent ward that we belonged to a year ago, and many more friends fasted for Nate and our family. Meals started coming in, so many friends visited the hospital, I had over 150 texts in the first 2 days, all in reference to Nate. We received flowers, cookie bouquets, cards, and treats. We are overcome with gratitude, and have truly been humbled to know how many people care for us. I only hope that somehow we will be able to express our gratitude to all of these friends and family members, and to our Father in Heaven, and his son, Jesus Christ.
Nate came home on February 9 to recover. The next week when we went to see his oncologist, we learned that this cancer isn't treated anywhere in Utah. There are actually only a handful of doctors around the country that treat it. That was pretty hard to hear. While we weren't totally surprised by the news, the confirmation of it was surreal.
I'm lucky to have a family who can pick up my slack. They've been researching online, calling my insurance, figuring out travel plans, and calling doctors. This gave me the opportunity to focus on helping Nate recover from his surgery and be here for the kids. My family is awesome!
It's been a hard recovery. Nate's been suffering from a partially obstructed bowel, and has lost 40 pounds. He hasn't been able to eat much and has been on a liquid diet. He stays positive though, and for that I admire him so much!
He seemed to turn a corner yesterday, and was able to eat a cinnamon roll! He's had a little more energy today as well! We're grateful for these blessings.
The treatment for this cancer is something called Heated Intraperitoneal Chemotherapy that's done in conjunction with another debulking surgery. They'll remove as much tumor as they can, the first layer of the peritoneal lining in the abdominal cavity, then place catheters, and administer the heated chemo directly into Nate's abdominal cavity. They'll let the chemo slosh around for 90 minutes. The entire procedure can take up to 12 hours. They call it the MOAS...the Mother Of All Surgeries. It's hard to think about facing something like this, but Nate is ready to fight. In total, we'll be gone for treatment for 3 to 6 weeks depending on how his recovery goes.
Our plan this week is to contact 3 to 4 doctors in Houston, San Diego, Spokane, and Boston. We'll be sending Nate's medical history to these doctors and wait a few days to find out who will treat him. From there we'll be interviewing the doctors and hopefully be able to pick one by early next week. Once we choose a doctor and facility, we'll need to get our insurance on board. Depending on how long that process takes, it'll still be a few weeks until we can be ready to travel for treatment. There will be more scans and tests, and tons of planning to do before we can leave.
Everyone's been so kind, and everyone wants to know what they can do to help. The biggest help we can ask for right now is for everyone to offer prayers on Nate's and our family's behalf. We've relied heavily on our faith and the faith of others. We know Heavenly Father loves us and is prepared to bless.
I'll try my best to update this blog as we get any new information. We appreciate all the thoughts, prayers, phone calls, dinners, and words of encouragement. It's impossible for us to convey our gratitude to you all. Please keep your prayers coming as we face a week full of tough decisions.
Wednesday, February 15, 2012
Check Here for Updates
This blog was created for the Hardy family to keep you updated on Nathan's condition.
Subscribe to:
Posts (Atom)